chronicillnesscat: [Image: 6-piece blue colored background with a Siamese cat with blue eyes. Text reads: “Get hopeful that this time, maybe, the doctor will give you a diagnosis” Realize the diagnosis means fuck-all because there’s no effective treatment”] I used to feel like that until I got my diagnosis (this took over a year of being very ill). Now that I have it, it’s both relieving and a burden: I know what I have for sure, but I have to accept that there’s not much to do about it :/
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chronicillnesscat:

[Image: 6-piece blue colored background with a Siamese cat with blue eyes. Text reads: “Get hopeful that this time, maybe, the doctor will give you a diagnosis”

Realize the diagnosis means fuck-all because there’s no effective treatment”]

I used to feel like that until I got my diagnosis (this took over a year of being very ill). Now that I have it, it’s both relieving and a burden: I know what I have for sure, but I have to accept that there’s not much to do about it :/

chronicillnesscat: [Image: 6-piece blue colored background with a Siamese cat with blue eyes. Text reads: “ «Your vegetarian diet is why you’re always sick.» Gee thanks, can you explain why I was even worse the 20 years before the diet change?”] You think people are idiotic and ignorant towards illnesses? Multiply that by 10 and you have about how idiotic and uninformed people are about vegetarianism/veganism. And add that to the first.  If I could have a dime for each person blaming my veganism for my illness…
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chronicillnesscat:

[Image: 6-piece blue colored background with a Siamese cat with blue eyes. Text reads: “ «Your vegetarian diet is why you’re always sick.» Gee thanks, can you explain why I was even worse the 20 years before the diet change?”]

You think people are idiotic and ignorant towards illnesses? Multiply that by 10 and you have about how idiotic and uninformed people are about vegetarianism/veganism. And add that to the first. 

If I could have a dime for each person blaming my veganism for my illness…

zladkohasaboaraffe: thenaughtynerdyomar: randomlancila: podunkqueer: Also… Sorry to frighten the fuck out of my new followers. THIS^ is love. I was dying, due to pcp pneumonia and acute respiratory failure/distress.  I lost over 150lbs, one of my lungs collapsed and will never re inflate, I had chest tubes, multiple IV’s, I was on a ventilator, had a tracheostomy, had to re-learn how to walk, talk, eat and breathe on my own, all over again. My husband, was there for me EVERY. FUCKING. DAY. The amazing doctors and nurses at KU Medical Center ALL commented on how amazingly dedicated my husband was. How few husbands show such tenderness and love. I would have died, had he not been there to keep me going. I have a man who wiped my ass for me because I messed myself in my hospital bed. Now, tell me that we are going to ruin the sanctity of marriage and I will bust your fucking teeth out. Wow. <3 This…. *lip quiver* bluuuuuuh *crying* Awesomeness, except for that last sentence, which really spoiled it for me. Anyway: My girlfriend took care of me while I was bedridden for two months last year when I became ill with CFS. Even today she takes care of most things around the house (food, shopping, cleaning, etc.) because I’m not capable of contributing my equal share. She is awesome and supportive and I love her, and this has nothing to do with marriage or taint or any of your stupid heteronorms and sought privileges. If anything, it contradicts.
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zladkohasaboaraffe:

thenaughtynerdyomar:

randomlancila:

podunkqueer:

Also…

Sorry to frighten the fuck out of my new followers.

THIS^ is love. I was dying, due to pcp pneumonia and acute respiratory failure/distress.  I lost over 150lbs, one of my lungs collapsed and will never re inflate, I had chest tubes, multiple IV’s, I was on a ventilator, had a tracheostomy, had to re-learn how to walk, talk, eat and breathe on my own, all over again. My husband, was there for me EVERY. FUCKING. DAY. The amazing doctors and nurses at KU Medical Center ALL commented on how amazingly dedicated my husband was. How few husbands show such tenderness and love. I would have died, had he not been there to keep me going.

I have a man who wiped my ass for me because I messed myself in my hospital bed.

Now, tell me that we are going to ruin the sanctity of marriage and I will bust your fucking teeth out.

Wow. <3

This….

*lip quiver* bluuuuuuh *crying*

Awesomeness, except for that last sentence, which really spoiled it for me.

Anyway:

My girlfriend took care of me while I was bedridden for two months last year when I became ill with CFS. Even today she takes care of most things around the house (food, shopping, cleaning, etc.) because I’m not capable of contributing my equal share. She is awesome and supportive and I love her, and this has nothing to do with marriage or taint or any of your stupid heteronorms and sought privileges. If anything, it contradicts.

The Final Waltz: spoons

bi-in-alberta:

unpopularsjopinions:

eyeballfish submitted:

if you do not have a chronic illness you should not be saying “I am out of spoons” or something of that nature. the spoon metaphor was invented so that the inventor could explain what it was like to have Lupus. the idea that you, someone who is mentally and physically healthy are at the same level of fatigue because you got in a fight over the Internet is some what ridiculous. 

As a mentally ill person, I don’t find the ‘spoon’ metaphor useful when I can just say something like ‘I don’t have the energy for this.’ That’s just me, though: I can see why other people with mental illnesses might use it.

^same

Bit off-topic, but the method I find most useful to describe my energy levels (as someone living with CFS) is by thinking about a life bar that stretches between my shoulders. I normally use this to communicate to my girlfriend how fatigued I feel by pointing where I am on it.

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